An important opportunity for newly diagnosed, untreated patients


[Editorial note: The trial referred to below completed enrollment in September 2011.]

If you are newly diagnosed, untreated prostate cancer patient, The “New” Prostate Cancer InfoLink is encouraging you to enroll in the “Healing Choices for Prostate Cancer” clinical trial. There is no cost; you don’t have to go to a clinical trial center; all you need to do is make an initial phone call to a toll-free number at 1-866-258-7981.

This trial has been developed in association with the National Cancer Institute to investigate the best possible ways to get helpful information to newly diagnosed prostate cancer patients — including you!

To participate

  • You must be living in the USA.
  • You must be newly diagnosed with prostate cancer and have had no treatment at all.

If you are eligible to participate in the trial:

  • You will be mailed a variety of important and helpful information on prostate cancer options — ranging from printed materials to multimedia CD-ROMs.
  • You will receive one follow-up phone call after 6 months.
  • You will receive a second follow-up phone call in 9 months.

And that’s it! The three phone calls will take an average of 20 minutes, total. All the information you provide will be competely confidential and will not be shared outside the study team. So call 1-866-258-7981 or just go to the “Healing Choices” web site to learn more.

This is an important study and we need your help. The results will help other men like you in the future too.

16 Responses

  1. Newly-diagnosed, untreated Anglo-Saxon male. resident of Albuquerque, New Mexico.

  2. Dear Charles:

    In addition to considering participation in the Healthy Choices in Prostate Cancer study, you might also want to join our social network, where you can benefit from the knowledge and experience of other prostate cancer patients and advocates.

  3. Newly diagnosed 74 white male; no treatment yet.

  4. I suggest you join our social network and ask questions there.

  5. My husband, a very young, vital 75-yearold is newly diagnosed. Looking at treatment options.

  6. the web site “Healing Choices” isn’t working as 9/4/11

  7. Dear Mr. Buffington:

    It is possible that this trial has finally enrolled its complete cohoprt of patients. SWe will be able to check this after labor day.

  8. Will you be involved in a clinical trial of Prostvac on stage I or stage II prostate cancer patients? If so I would be interested in participating.

    Andy

  9. Dear Andy:

    We are not aware of any projected clinical trials of Prostvac in treatment of localized or locally advanced forms of prostate cancer at this time. The only trials of Prostvac currently enrolling patients or scheduled for the immediate future are for men with castration-resistant prostate cancer.

  10. Your link to healing choices does not work. If this is intentional, then you might want to consider retiring this page as well and removing references to this page from your other pages. If this is not intentional, you might want to contact your sysadmin/web guy to repair the site. Thanks.

    By the way, I am 47, I had a biopsy, my PSA is 6.1 as of about a month ago, and I am figuring I am 50-50 with respect to the cancer (no prostatitis). I am looking for all the resources I can get my hands on.

  11. Dear John:

    At age 47 with a PSA of 6.1 ng/ml, you are at significant risk for a diagnosis of prostate cancer. You would be wise to consider a biopsy while also recognizing that a positive result from such a biopsy might indicate low- or very low-risk disease that did not require immediate intervention.

  12. Mr. Sitemaster,

    I have already had a biopsy, which, I have to tell you, was painful. Just lidocaine, no twilight or valium or any of the other nice pharmaceuticals that could have helped me float off to dreamland while my body suffered something like medieval torture. I also stated in my message that I am aware that I am high risk. I do agree that it should be non life-threatening and low-risk as you pointed out, given the PSA level. The only thing that concerns me a little about that, though, is the fact that my prostate is strangling my urethra, which is causing problems with urination. Even if it is not cancer, I am thinking I am going to need an operation. With respect to that, I am thinking about having the whole thing removed so I do not have to go through the operation again in 10 years, and by doing that I could head off even my risk of having prostate cancer later in life.

    By the way, all of the links on the page I came from lead to exactly the same page. I was hoping to read some of the articles that the links were supposed to point me to, especially those about how staging works and what is behind the Gleason scales.

    Thanks for your reply.

    John

  13. Dear John:

    I get the strong impression that you are confused about a number of issues. I strongly suggest you join our social network, where someone can help you to get a detailed understanding about what is going on in your specific case. In the meantime, here are links to explanations about clinical staging and Gleason scores.

  14. Just diagnosed with prostate cancer; age 59 years; PSA 16 ng/ml; clinical stage T1c, nonpalpable; Gleason score 3 + 3 = 6.

    Due to the intermediate grade starting PSA, the various “Cned and Bned” results go way down. Does that mean death after therapy failure?

    I looked at conventional (photon), CyberKnife (photon), and proton beam radiation therapy. Proton seems to have much less side effects per less radiation exposure to healthy tissue than photon, with similar “cure” rates?.

    (Once again though, that PSA at 16 reduces the cure rates from the low 90s or high 80s with a single digit starting PSA to the 70s or 60s in studies I’ve noted.)

  15. Dan:

    (1) Please join our social network and we can discuss your case in detail there. However, in addition to the data you have provided above, we will also need to know the number of biopsy cores your urologist took and how many of those cores were positive for cancer.

    (2) Your case may or may not be treatable with curative intent. Yes, you have intermediate risk prostate cancer based on the D’Amico scale, but that does not in and of its elf mean it is not curable.

  16. The number 1-866-258-7981does not work. Message says “cannot be completed as dialed”.

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