Living with late stage prostate cancer


There is a valuable video interview that was put on line a couple of days ago featuring Dr. William Oh of the Mount Sinai Hospital and Medical School in New York and Jan Manarite of the Prostate Cancer Research Institute.

The video is on the San Diego Channel 6 web site, and the most valuable parts of the video for patients and their family members is what Jan Manarite has to say about living with late stage prostate cancer — which her husband did for 13 years after being initially diagnosed with a PSA of 7,000 ng/ml and evident metastatic disease. Watching this video is certainly worth a few minutes of your time.

5 Responses

  1. Thanks for posting that. I thought if one had any sort of metastatic cancer, survival would be measured in months. And, I think that might be a fairly common perception.

  2. Doug:

    Misconceptions like this are a big problem that lead to a lot of over-treatment for all sorts of cancers.

    There certainly are forms of prostate cancer and other cancers (metastatic or not) that are extremely aggressive and are associated with very short life expectancies. However, many cancers are not that aggressive, and many people live for years with a variety of metastatic forms of cancer (prostate cancer very specifically included). Indeed, prostate cancer is arguably one of the “poster children” for the fact that people can live for a decade or more with metastatic forms of cancer.

  3. Thanks for sharing this video. Dr. Oh was my first prostate cancer doctor when he was still at Dana Farber Cancer Institute in Boston. I was diagnosed at stage IV, metastatic, with a PSA of 3.2. That was 6.5 years ago. I have gone through all the new drugs and am now on Xofigo. The 13-year survival of the woman’s husband mentioned in the video is certainly encouraging, as I, like the previous responder, have been measuring in months too.

  4. I watched this video twice on two different days. It is nice to see that someone diagnosed with extensive metastases (just like me) survived 13 years. However I would have liked very much if there had been a mention of the generic distribution of survivor time after diagnosis for this clientele. How much of an outlier is this case? What percentage of this group can expect such a result. It is nice to know that this result is possible. However for each big lottery there are a few winners. This person probably was?

    PaulP

  5. Paul:

    The survival spectrum ranges from about 6 months post-diagnosis in men with the most aggressive forms of metastatic disease to about 15 years in relatively few cases. The average is now somewhere around 4 to 5 years (up from 18 months to 3 years back in the early 1990s). You might be interested in this commentary from 2012.

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