A new survey being conducted by an experienced research team at the University of Calgary in Canada is seeking participants.
You may have completed something similar in the past, but this new study aims to identify predictors of sexual distress and sexual satisfaction in men with prostate cancer or after prostate cancer treatment. To be eligible to participate you must be male, you must have a history of prostate cancer, and you must be able to read and understand the English language.
To take the survey, simply follow this link.
The survey will take approximately 20 minutes to complete.
This study has been approved by the Health Research Ethics Board of Alberta (Ethics ID: HREBA.CC-18-0249). If you have any questions please contact the Study Coordinator, Dr. Pablo Santos at Pablo.Santos@ahs.ca or 1-844-811-8227.”
Filed under: Living with Prostate Cancer, Management | Tagged: distress, sexual, survey |
THE "NEW" PROSTATE CANCER INFOLINK 
Whomever came up with the term “sexual bother” has either not experienced the devastating consequences of prostate cancer treatments or has not done his/her research. Either losing the ability to have sex with your partner or subjecting oneself to alternative methods including injections, pumps, etc., has, in our experience, altered irretrievably the intimacy and the dynamic of the relationship we once possessed. We love and support each other but something very fundamental has changed.
I believe that the medical community has let us down by dismissing and or diminishing the long-term consequences of their treatments. Are they uncomfortable having serious discussions regarding the subject or do they accept these life-altering consequences as secondary to the primary treatment and well, just learn to live with them?
I very much identify with Donna Gorman’s scathing irritation with the phrase “sexual bother”. And it is a relief to have someone put into words what I feel.
That said, this survey is brilliant — in many ways. As a man who experienced everything Donna refers to, I found doing the survey to be an affirming, healing, and thoughtful experience.
I highly recommend that every couple who has had to cope with this difficult and infuriating disease complete this survey. And I recommend that every couple that is considering what treatments to accept, and when, and what strategies there are to recover potency complete this survey. Actually, I think that every couple in the world would benefit from doing this survey. Especially if they can find the courage to share their answers with each other.