By late yesterday nearly 600 men had completed our recent survey and most of them had expressed some degree of interest in participating in the quality of life trial we will be initiating soon. Again, thanks to all of you who have done that.
The survey will remain open until late this coming Saturday, and we’d still like to see if we could get get to a total of 750 or more participants if we can. Please understand that, even if you participate in the survey, there is no obligation to download the new app and participate in the clinical trial (see below).
To repeat what we have said in our prior messages, Prostate Cancer International (PCaI) along with two of our partners — CancerLife and the John Wayne Cancer Institute in Santa Monica, CA — will soon be asking men to participate in a new clinical trial about quality of life and living with prostate cancer.
This trial will allow prostate cancer patients to download a new type of app to mobile devices and then track all sorts of relevant information and how they are feeling over time. Trial participants will be able to (a) download reports; (b) share information with other participants in the trial; and (c) get feedback. A critical goal for us is going to be getting invitations out to the right types of patient, and by filling out the current survey you are helping us to define the primary target audience with a high degree of accuracy.
You can complete the very brief, seven-question survey if you click here. It only takes about 5 minutes of your time — at most.
And as we had also mentioned before. … In the beginning we will only be able to enroll men into the trial who are located in the US, but we hope to expand the enrollment to men living in other countries where English is widely spoken, like Canada, Australia, England, South Africa, and European Union nations. So long as you have been diagnosed with prostate cancer and can read and write in English, you are a potential candidate to participate in this trial either early or maybe a little later.
Filed under: Uncategorized | Tagged: app, clinical, life, OoL, quality, trial |
THE "NEW" PROSTATE CANCER INFOLINK 
OK: I’ve answered so hopefully that is what is looked for.
I appreciate the effort but one problem I personally would have with a continuous-monitoring survey app is it would interfere with my management strategy. I have a terrible memory and I deliberately put it to work to forget I have prostate cancer between appointments. So I can spend most of the time deep in denial. The starting point for a response to “Bzzt: how are you feeling about your PCa?” is going to be: “I have PCa? Oh Gd!”
I’m dead serious. And just thinking on the fly here, I can’t think of many stages, or even many non-infectious diseases, where this isn’t true. It’s a real memento mori.
Dear Bill:
So clearly you aren’t a gpod candidate for this sort of service. Others may feel very differently.
i provided the extremely simple input and it took less than 5 minutes! C’mon guys, simple as can get, you took the time to read this, then you would have needed less time to answer the simple, few, questions.