The Metastatic Prostate Cancer Project: an update

In May 2017 we first let you know about the start-up of the Metastatic Prostate Cancer Project, which was subsequently launched in January 2018. Prostate Cancer International is one of the founding partners — along with the Broad Institute and others — in the development and evolution of this project.

Last Saturday, at our patient conference in Ft. Myers, FL, Dr. Eli Van Allen, the principal investigator for this project kindly came and spoke to us and the other attendees about the current state of the project, so here’s a quick summary of where it is at:

  • Over 650 men with metastatic and/or advanced prostate cancer have now visited and clicked on the “Count Me In” link to sign up and participate.
  • Just 1 year after the project launch, data from 19 patients are being shared in the first of many data releases to enable the entire research community to learn more about this disease. For more information, click here.
  • Every day, more patient samples, patient-reported survey data, and clinical information from medical records are being collected to be analyzed and shared.
  • As these data continue to be generated, they will be appropriately de-identified and released at 6-month intervals, with the goal of generating a comprehensive database to accelerate discoveries in metastatic prostate cancer

The primary goal of this project and its growing data set is to allow as many researchers as possible to make discoveries that can accelerate our detailed understanding of the drivers of metastatic and advanced prostate cancer and the treatments that may offer the greatest level of hope for patients with highly defined genomic profiles — using both germline and somatic profiles.

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