PCaI joins with Cancer ABCs to advocate for protection of access to cancer and other drugs

For many years now, here in the USA, access to FDA-approved drugs for the treatment of cancer and other severe forms of disorder have been guaranteed under Medicare. … READ MORE …

Cancer “journey”? … What cancer “journey?”

One of the ways that some prostate cancer patients help themselves (and others) is through the ways that they engage with other patients and families and the health care systems in the areas where they live. … READ MORE …

Good advocacy, good advice, and the quality of CARE

Your sitemaster has decided that we need to be very clear about something related to the management of (in particular) low-risk and very low-risk, localized prostate cancer — but it applies across the prostate cancer spectrum over time … … READ MORE …

Being an advocate — thoughts on what it means

I am an advocate by surprise.  I believe I join a group of thousands, maybe millions who would say the same.

What Tony Crispino does to pass the time when he’s bored (NOT!)

Many readers may be interested in this article about Tony Crispino (a regular commentator on this web site) and his activities as a prostate cancer advocate. It appeared a few days ago in the Las Vegas Review-Journal.

PCPC3 advocates for long-term funding increase for DoD PCRP

PCPC3 — the the patient-centered prostate cancer collaborative coalition — has just issued a detailed statement in strong support of an increase in the funding for the Prostate Cancer Research Program (PCRP) within the US Department of Defense. … READ MORE …

Introducing PCPC3

The following statement was issued this morning by a new, patient-centric group of prostate cancer education, advocacy, and support organizations here in the USA. As indicated below, Prostate Cancer International — the parent organization behind The “New” Prostate Cancer InfoLink — is a founder member of the new group. … READ MORE …

The cost of drugs for the treatment of cancer — in the pressure cooker

According to an announcement this morning from The Mayo Clinic, a group of 118 leading cancer experts has drafted proposals for reducing the high cost of cancer drugs and voiced support for a patient-based grassroots movement demanding action on the issue. … READ MORE …

In memoriam — Michael Katz, MBA

This has just a very little to do with prostate cancer but everything to do with cancer patient advocacy. … READ MORE …

Introduction of a proposed National Prostate Cancer Council Act

So, according to a communication to its members from the American Urological Association (AUA), U.S. Senators Barbara Boxer (D, CA) and Jeff Sessions (R, AL) have just introduced S. 2813, the National Prostate Cancer Council Act. … READ MORE …

Prostate Cancer Roundtable updates policy agenda for 2013

The Prostate Cancer Roundtable has announced an update to its policy agenda for 2013, concurrent with the start of the work of the new Congress here in the USA. … READ MORE …

There is life after YANA … and Terry … you deserve it!

Terry Herbert — the founder and organizer of the YANA web site — has announced that he will be closing down the Experiences section of YANA at some time in the near future. After coordinating the YANA site for most of the past 15 years, Terry has (appropriately) decided it is time for him to spend a little more time enjoying life. … READ MORE …

The 2011 Summit to End Prostate Cancer In Washington, DC

Prostate Cancer International and other members of the Prostate Cancer Roundtable are planning to attend and support the ZERO Summit Against Prostate Cancer in Washington, DC, on September 20 to 22 this year, and we encourage all prostate cancer patients, family members, advocates, and others to try and join us in making this a major annual advocacy event. … READ MORE …

Write your Congressman or woman: protect funding for the PCRP

Please take just 5 minutes to write your Congressman or Congresswoman and ask him or her to continue to support and protect funding for the Department of Defense’s Prostate Cancer Research Program (PCRP). We need your help before May 12. Just click on the link above to use the ZERO CapWiz program. … READ MORE …

Prostate Cancer Roundtable gets web site up and running

It has taken a while to get there but the Prostate Cancer Roundtable finally has its own web site up and running. This will make it a good deal easier for people to keep up to date with the shared advocacy agenda and related activities of the major, US-based, patient-centric prostate cancer organizations. … READ MORE …