NOW AVAILABLE … the new PCa Social Network PLUS app

Back in February this year we had told you about the development of a new type of social network that would (a) allow men to share information about their prostate cancer with each other and (b) collect that data to evaluate whether such networking improved patients’ quality of life. … READ MORE …

LAST CHANCE to participate in our current survey

By late yesterday nearly 600 men had completed our recent survey and most of them had expressed some degree of interest in participating in the quality of life trial we will be initiating soon. Again, thanks to all of you who have done that. … READ MORE …

PLEASE consider completing our recent survey!

So just over 300 patients have already completed the survey that we put up on line last Friday. Thanks to all of you who have done that. And we’d really like to see if we can get to a total of something like 750 “with a little help from our friends”. … READ MORE …

A new study (and new technology) about quality of life and prostate cancer

Prostate Cancer International and two of its partners — CancerLife and the John Wayne Cancer Institute in Santa Monica, CA — are soon going to be looking for men to participate in a new clinical trial about quality of life and living with prostate cancer. … READ MORE …

PROs and HRQoL among patients participating in the LATITUDE trial

A newly published paper in The Lancet Oncology has provided early data from the LATITUDE trial on patient-reported outcomes (PROs) and health-related quality of life (HRQoL) for men with newly diagnosed, high-risk, metastatic, castration-naive prostate cancer. … READ MORE …

PROs, quality of care, quality of outcome, and quality of life

As regular readers will be aware, your sitemaster is mildly obsessed with issues related to the quality of care that prostate cancer patients receive over time (as well as the quality of specific types of care at specific points in time). … READ MORE …

“How are you feeling?” can be an important question for men on ADT

At the upcoming meeting of the American Society for Clincial Oncology (ASCO) meeting in Chicago, Dr. Alicia Morgans of Vanderbilt University will be speaking about the physical and cognitive effects of systemic therapy in older men with prostate cancer. … READ MORE …

More on “living well” with prostate cancer

The second of our CureTalk discussions was held yesterday evening with Dr. Paul Schellhammer, Tony Crispino (the patient advocate for the Southwest Oncology Group (SWOG) Genitourinary Cancers section, and patient support group leader Paul Carpenter. … READ MORE …

Kaiser reports on quality of life outcomes after first-line treatment for prostate cancer

Kaiser Permanente maintains a large data registry in  order to assess the quality of outcomes over time among tens of thousands of Kaiser patients, prostate cancer patients included. … READ MORE …

Listen to Dr. Schellhammer discussing “Living well with prostate cancer”

Yesterday evening we were able to spend an hour talking with Dr. Paul Schellhammer — a prostate cancer patient and also a widely recognized prostate cancer specialist — about issues related to quality of life  and “living well” after diagnosis and treatment for prostate cancer over time. The recording of this conversation is now available on line on the CureTalks web site. … READ MORE …

Outcomes, side effects, quality of life, and choosing a treatment that works FOR YOU!

Three articles in this week’s Journal of the American Medical Association throw a little more light on issues related to quality of life after diagnosis and treatment for localized prostate cancer … but quite how much light it is difficult to tell. … READ MORE …

Wotz goin’ on in Canada? And wotz “True Nth”?

So apparently Prostate Cancer Canada has been working (rather secretively) on a series of projects under the umbrella name of their “True Nth” initiative. But it’s a little difficult to work out quite what is encompassed by this initiative, which has been funded (at least in part) by Movember. … READ MORE …

SBRT vs. moderate hypofractionation: same or better quality of life?

In several randomized clinical trials of external beam treatment of primary prostate cancer, we have seen that moderately hypofractionated intensity-modulated radiation therapy (HypoIMRT), accomplished in 12 to 26 treatments or fractions, is no worse than conventionally fractionated IMRT treatment (in 40 to 44 fractions). … READ MORE …

Outcomes, survival, and HRQOL in trials of new drugs (and what they mean in practice)

A new paper in the journal Quality of Life Research has raised the question of whether it is possible to use available quality of life data from Phase III trials of new drugs in the treatment of advanced prostate cancer to make rational decisions about the use of those drugs in clinical practice. … READ MORE …

Can a man be too young for active surveillance?

There is a “conventional wisdom” that active surveillance (AS) is only for older men, and that younger men are better off having immediate radical treatment, typically prostatectomy (RP).