Next patient conference near Cincinnati, OH, in April 2020

On Saturday, April 18, 2020, Prostate Cancer International (PCaI) will collaborate with the local chapter of the Cancer Support Community to hold a patient and family educational conference on prostate cancer near Cincinnati, OH. … READ MORE …

Patient satisfaction and the management of localized prostate cancer

A recent paper from a large Swedish research group has addressed patient satisfaction and the management of localized prostate cancer — with a specific, inclusive focus on the satisfaction of men initially managed on active surveillance. … READ MORE …

A chance for US patients to “speak to power”

The roles of patients, patient advocates, and other members of the public in decision-making about the research that is funded by NIH and other agencies here in America is sadly somewhat limited, … READ MORE …

PCaI patient education conference: March 2, Ft. Myers, FL

Prostate Cancer International (PCaI) is excited to be holding its next patient education / information conference in Fort Myers, FL, on March 2, 2019, from 9:00 a.m. to 5:00 p.m. For complete details of the meeting agenda, the speakers, how to register, and other facts, please click here. … READ MORE …

PCF publishes updated patient handbook

The Prostate Cancer Foundation (PCF) has just published the 2019 update to its Prostate Cancer Patient Guide, which is a very useful (and free) introduction to prostate cancer for patients and their caregivers. … READ MORE …

Patient education / information meeting in Fort Myers, FL, in March

Prostate Cancer International (PCaI) will be holding its next patient education / information meeting in Fort Myers, FL, on March 2, 2019 from 9:00 a.m. to 5:00 p.m. For complete details of the meeting agenda, the speakers, how to register, and other facts, please click here. … READ MORE …

“Prostate Cancer Today” — Dr. Frans Debruyne joins meeting faculty

This will be our last reminder that Prostate Cancer International is holding its second annual prostate cancer patient meeting (“Prostate Cancer Today: Living Well; Choosing Wisely”) on October 13, 2018, in Virginia Beach, near Norfolk, Virginia, USA. As of this morning we have > 170 advance registrants for this meeting. … READ MORE …

“Prostate Cancer Today” — patient education meeting in Virginia Beach

This is another reminder that Prostate Cancer International will be holding its second annual prostate cancer patient meeting (“Prostate Cancer Today: Living Well; Choosing Wisely”) on October 13, 2018, in Virginia Beach, near Norfolk, Virginia, USA. … READ MORE …

The importance of listening to patients

A report yesterday on on the MedPage Today web site quotes Scott Gottlieb, MD, the Commissioner of the U.S. Food & Drug Administration (FDA) on the importance of “Listening to patients” and on how patients’ perspectives can inform drug development, drug review, and physicians’ prescribing habits. … READ MORE …

Prostate ablation using HIFU — the role of patient preference information

A newly published review by staff of the Center for Devices and Radiological Health (CDRH at the U.S. Food & Drug Administration (FD) addresses the potential role for patient preference information (PPI) in determining patient perceptions of the “value” of high-intensity focused ultrasound (HIFU) and similar techniques in the management of prostate cancer. … READ MORE …

How can shared decision-making work well if we aren’t starting from the same point?

Now here is a very interesting set of data from (admittedly) a small pilot study by a group of Italian researchers. … READ MORE …

“Prostate Cancer Today”, October 13, 2018 (in Norfolk, VA)

This is an initial announcement that Prostate Cancer International will be holding its second annual prostate cancer patient meeting (“Prostate Cancer Today: Living Well; Choosing Wisely”) on October 13, 2018, in Norfolk, Virginia, USA. … READ MORE …

Patient choice and the effectiveness and safety of HIFU

An interesting article has just been published in the Journal of Urology which helps to provide information (and context) about the quality of data supporting the use of high-intensity focused ultrasound (HIFU) in the treatment of prostate cancer. … READ MORE …

A survey on “Understanding your prostate cancer experience”

Researchers at the University of Galway in Ireland have recently posted a short, anonymous, questionnaire on line related to psychological and emotional aspects of being diagnosed with and treated for prostate cancer. It took about 7 minutes to complete. … READ MORE …

Just fix the [deleted] phone — please!

This has nothing to do with prostate cancer in particular, but a lot to do with medical practices and the patient experience, so it’s probably going to interest at least some of our readers. So click here and pass it on to your doctor’s office after you’ve read it (if appropriate).