This extensive list of (primarily US-based) on-line prostate cancer resources is maintained by Nancy Peress on behalf of Us TOO International. Copyright to this list is owned by and the list is reproduced here by kind permission of Us TOO International.
Please note: These are simply pointers to Internet-based prostate cancer resources, and should not be regarded as any sort of recommendation or endorsement. It’s up to you to carefully weigh the information you find, and discuss it with your own physician.
The list was most recently updated on September 6, 2009.
MAILING LISTS AND FORUMS
- Prostate Problems Mailing List (PPML): An unmoderated forum which discusses problems and treatments related to men’s prostate gland. This is a broad-based, comprehensive forum with extremely knowledgeable participants. To subscribe, go to: http://ppml-info.org
- Physician To Patient (p2p): The purpose of the p2p mailing list is to provide the prostate cancer patient or other interested parties with information from physicians about the treatment of prostate cancer. This is a moderated list without the high volume normally associated with mailing lists or the frequent off-topic questions. To subscribe, go to: http://www.prostatepointers.org/mailman/listinfo/p2p
IMPORTANT: Every message sent to p2p must contain a Prostate Cancer Digest. Instructions for preparing your digest are in the first issue of PCRI Insights, which you can get in .pdf format here: http://www.prostate-cancer.org/resource/insights.html. The same instructions are also available as a webpage: http://www.prostatepointers.org/p2p/pcd.html
- NewDx: NewDx offers information and support to those newly diagnosed with prostate cancer. Experienced PCa patients who want to help the newly diagnosed are encouraged to join! To subscribe, go to: http://www.prostatepointers.org/mailman/listinfo/newdx
- The Circle: Support for wives, families, friends, and significant others of men with prostate cancer — and, of course, the men themselves. To subscribe, go to: http://www.prostatepointers.org/mailman/listinfo/circle
- SeedPods: A mailing list for those interested in brachytherapy (radioactive seed implants) as a treatment for prostate cancer. To subscribe,go to: http://www.prostatepointers.org/mailman/listinfo/seedpods
- RP: A mailing list dedicated to the needs and concerns of radical prostatectomy patients. The sole purpose of this list is to narrowly focus on the concerns of those who have already had an RP or have selected RP as their treatment. To subscribe, go to: http://www.prostatepointers.org/mailman/listinfo/rp
- The RP-Help Wiki: A compendium of knowledge and help from longtime RP subscribers. Please first subscribe to RP (see above) and then get the wiki URL from the RP welcome message
- IceBalls: A mailing list offering information and support to those interested in cryosurgery for prostate cancer. To subscribe, go to: http://www.prostatepointers.org/mailman/listinfo/iceballs
- CHB: CHB offers discussion and support for patients interested in any form of hormonal blockade. This includes: orchidectomy, medical hormonal blockade [Lupron, flutamide, Proscar, etc.] as well as food supplements such as PC-SPES. To subscribe, go to: http://www.prostatepointers.org/mailman/listinfo/chb
- EBRT: EBRT offers discussion and support for patients interested in any form of radiation therapy for prostate cancer. To subscribe, go to: http://www.prostatepointers.org/mailman/listinfo/ebrt
- WW: WW offers discussion and support for patients interested in active surveillance as a strategy for the management of prostate cancer. To subscribe, go to: http://www.prostatepointers.org/mailman/listinfo/ww
- Prostate Cancer and Intimacy (PCAI): PCAI is a mailing list for frank and open discussion of the sexual issues surrounding PCa. To subscribe, go to: http://www.prostatepointers.org/mailman/listinfo/pcai
- The PCAI Wiki: A collaborative treasure trove of knowledge and help from longtime PCAI subscribers. Please first subscribe to PCAI (see above) and then get the wiki URL from the PCAI welcome message
- Spirit: Spirit is a mailing list for those who want to share spiritual support as they live with prostate cancer. To subscribe, go to: http://www.prostatepointers.org/mailman/listinfo/spirit
- Promise: A mailing list for those grieving a loss. Also offers help and support to those with a spouse, partner, or family member in the last stages of life. To subscribe, go to: http://www.prostatepointers.org/mailman/listinfo/promise
- Coach-to-Player (C2P): PC-REF’s mailing list where patients and loved ones can ask prostate cancer questions of Israel Barken and other doctors. To subscribe, go to: http://www.pcref.org/c2p.php
- Advanced Prostate Cancer: A group for men and their families with APC
- Prostate Cancer Under 50: A group for men diagnosed with prostate cancer age 50 and under, and their families
- PCa_Women: A group for the spouses and partners of men with prostate cancer
- A Prostate Cancer Forum for Ladies Only: A safe place is provided to help deal with medical, emotional and life style changes that accompany the diagnosis of prostate cancer. To register and participate, go to: http://www.ladies-prostate-forum.org/ladies/
- Prostate Cancer Action Network: A forum for discussing important issues affecting the care and treatment of prostate cancer survivors, and ways to bring about needed change. To subscribe, go to: http://www.prostatepointers.org/mailman/listinfo/pcan
- Prostate Cancer and Gay Men: To subscribe, go to: http://health.groups.yahoo.com/group/prostatecancerandgaymen/
- Humor and Healing (HAH): HAH is a humor list for the online PCa community, more intimate and friendly than the big Internet joke lists. To subscribe, go to http://www.prostatepointers.org/mailman/listinfo/hah
PROSTATE CANCER WEB SITES
- ProstateVideos.com — Prostate cancer education in video format
- “Comprehensive Management of Prostate Cancer” by Charles E. Myers, MD ( a prostate cancer medical oncologist)
- ZERO — The Project to End Prostate Cancer (formerly the National Prostate Cancer Coalition)
- Prostate Cancer Research and Education Foundation (PC-REF)
- MultiGraph: your medical history in graphic form, free from PC-REF (contact John Finistere)
- Ask Dr. Barken: FREE, weekly Telephone Call-in Show
Date: Every Tuesday, 6 pm Pacific, 9 pm Eastern
Call: TOLL FREE 1-877-727-3301, (1-877-PCREF-01)
Listen Later: Past shows are archived at www.pcref.org
- Malecare — Multi-lingual website of national nonprofit prostate cancer support group network
- Advanced Prostate Cancer — Joel Nowak’s advanced prostate cancer treatment and advocacy blog
- Prostate Cancer Advocacy — Kathy Meade’s advocacy blog
- Living with Prostate Cancer — Leah’s blog about living with men with prostate cancer
- Brotherhood of the Balloon — Proton beam treatment information and support
- National Physician & Family Referral Project — Prostate cancer in African-American men
POWERFUL SEARCH ENGINES AND TOOLS
- PubMed search
- Google Scholar (search for papers)